We have gotten back home after a 24 hour whirlwind trip to Cincy and back. It was a great day! We are so thankful to say we got all good reports. Her kidney and bladder ultrasound look good therefore no cathing for now, with hopes that we may not ever need to. We do know that she is still not completely emptying her bladder therefore will still need to be followed to be certain her kidneys remain healthy. We will have a follow up ultrasound in February here in Memphis to make sure she still looks good. In June she will have repeat urodynamic and cystogram either here or in Cincinnati to see if there is improvement with bladder function. I am weary with the whole “do we cath or not cath” talks with doctors so I am thrilled to be receiving this break!!
She is healing nicely from her surgery and will be back to enemas next week, yay. She may or may not need them in the future, we will wait until she is mature enough to desire the changes it will take to not need them. Her dilation training went easy peasy, I’m quite certain she would have had a fit had Daddy not been there, just the laws of nature in this child business. Instead she played on the ipad while we messed with her, seriously! Thank you Lord!! This is the child that made me break out in a cold sweat just hours before because she refused to take her coat off to go through security. I had to wrestle her out of it as people stared at me unable to handle a 4 year old…good times. She just wants to keep me on my toes:). We will start potty training next week for urine and hope to go without pull ups in the next few months.
I know this is way too much info but I share this here as an encouragement to those who may consider a child with Janie’s need. As you know from me, Miss Talks Too Much, you get the good, the bad and the ugly and then some more.
I also share too much info for the fact that this is who Janie is. This is her story to look back on to see how far she has come, how much she has overcome and to see God’s hand in her life since He created her. Her story deserves to be told.
This pic sums up our day in Cincinnati…….